Spot of Autumn

photo by MichelleMarie
photo by MichelleMarie

I don’t know what
made me look up
from my sorrow
but I did
and this is what I saw this
Spot of Autumn
before my eyes
such a nice surprise
lifted my sorrow

still I wait. . .

We wait for Alex’s doc to give us instructions still, her right lung is 1/2 full of fluid….still waiting for results of the CT scan from yesterday. They aren’t even concerned about TB now, but finding out what is in her lung. She’s been sick for 2 weeks, with cdiff and infection of the lower intestine caused by too many antibiotics so right now there is nothing that can be done. Except for being hospitalized she’s home with me, there really isn’t anything they can do for her that I’m not trained to take care of so she feels better if she’s home and can rest more comfortably at home. I wanted to let you know so you know where my sorrow comes from. Alex has been fighting illness and tends to always suffer during this time of year. The list of diseases is now 5, so I am juggling each of those trying to find something that will help her. Right now sleep is all that will help her body fight…I’ve called everyone I can think of, her docs cell phone has 4 messages,  the radiologist has received 3 calls from me and I’m not giving up till we have a treatment plan.

If you are my close friend to me, you know that Alexanderia almost died to pneumonia in 2011. Her body has been bombarded with antibiotics that there are no more they can try, hence the cdiff in her colon. Since her immune system is compromised by other diseases, we wait for her body to fight. If the fluid continues to build they will place a chest tube, last time they drained over 2700 liters from her right lung. It’s quit scary and I pray something happens because that is my next step if I don’t hear something different. There is a lung specialist at the hospital, so I may try him next to see if he could help us.

Know that my faith is rock solid it never wavers but prayer for the doctors to do something would be nice.
Much love and huge hugs to you!

MichelleMarie

17 thoughts on “Spot of Autumn

  1. Wow, it sounds like your daughter is suffering quite often from bad health. I’m so sorry. It sounds like you have turned it into a blessing for both of you, and that you relish the time you can share together. God bless.

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