You are not alone~Take my hand and we’ll walk through hell together. Let hope be your guide as grace carries you through. Always believe in the impossible. Always! Never give up!!!!
Your name just popped up on my computer and seems like someone heard me wondering about you lately. How are things going? And how is Alex doing? You are both in my thoughts lately and that makes me a bit nervous because there are times that the ones I am thinking about are in trouble. Please let me know something. I care about you even though I don’t blog often now. I love you.
Hi there, I’ve been thinking of you too. Great minds. Alec had eye surgery so I’ve been in Texas for two weeks taking care of her. We won’t know for a month if it was successful. Meanwhile, her right eye, that she’s been blind in since 2015 started to see shadows and then in the last few weeks has started to see details and the doctor can’t explain why her vision in that eye is returning but what a miracle she isn’t completely blind. It’s been very stressful because I worked remotely from there. I’m back home now getting ready to go to the office tomorrow. Alex’s husband does a great job taking care of her. I’m so thankful for him. Other than that, I’m doing okay. Just hanging in there and working a lot. I was reading your posts to see how you have been doing. It’s so good to hear from you. You are so strong. Sending love and a big hug to you. 🧡🧡
One of the weird things about MS is that nothing is sometimes everything. Sight can be gone for a time and then come back, everything is temporary before it becomes something recovered. I once spent 3 days and nights paralyzed, sitting in my chair and unable to move at all then on the 4th day got up and all was well. I guess that’s what makes this such a hard to handle disease.
It’s great to hear that Alex got some of her vision back. There is always the chance that it will all come back like new but I try not to hope for the best because there is also the chance that it will be gone forever. That seems to be what makes this disease so difficult to diagnose and treat, but there are new inroads every day to the cause and hopefully some day there will be a cure. I probably won’t live long enough to see the cure but at 83 I’m doing remarkably well.
My life now is spent in assisted living after a few falls and broken bones. I’ve had a couple of falls here but managed to get up before any of the staff knew about it. And then there were the crazy ones. Like sliding out of my chair once and knocking my lunch tray off the table. Might have been able to get up from that one but they came in to collect the tray and found me trying to clean up the mess. That led to a week of having them take my vitals every hour which was a crazy way to have to live. Nothing like the fun of being half asleep and having a thermometer shoved in your mouth, or as in one time it was shoved into the bite of link sausage I had just put in my mouth. The sausage temp was 105 degrees and they wouldn’t take my word for it that my temp was normal but thanks to the kitchen for getting the food to me while still warm.
There have been a few bad times when 2 of my brothers died, the first one in 2020 and the second one last year. Following the second one, both of my sisters’ husbands died in April for one of them and 4 hours after that one was buried the other one died. The worst time though was in August when my 29 year old grandson was found unresponsive on the floor of his apartment. After extensive testing it was found that he was brain dead and my daughter and son in law decided to stop life support. His twin sister was there as were his two brothers, and we are still trying to deal with that. He was diabetic and they just couldn’t seem to regulate his insulin level.
There are some things I don’t mind about getting old but not being able to tell my siblings goodbye was not one of them. They all lived away and I am not able to travel any more. So now I’ve taken up most of your space here, but it is strange that we were thinking of each other at the same time. Let’s keep in touch, okay? HUGS!
You are not alone either sweet friend. I’m only a call away, and you and Alex are in my prayers. If talking will help, call any time day or night, I have a dry shoulder and good ears and a speaker phone with loads of liquid to keep my throat open when you want to listen, or ear drops if you want to talk and my ears get dry. Angie
AWE thank you! That is so sweet of you! I made this for Alex today! Hopefully she liked it! She’s a little upset today! Big hugs to you and thank you so much Angel friend! ❤ xoxo
Thank you so much. You’re right I am. Also as I’ve gotten older decreeing my real friends has been so much easier. I’m very thankful for them. Thank you for your sweet comments! ❤️
Your name just popped up on my computer and seems like someone heard me wondering about you lately. How are things going? And how is Alex doing? You are both in my thoughts lately and that makes me a bit nervous because there are times that the ones I am thinking about are in trouble. Please let me know something. I care about you even though I don’t blog often now. I love you.
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Hi there, I’ve been thinking of you too. Great minds. Alec had eye surgery so I’ve been in Texas for two weeks taking care of her. We won’t know for a month if it was successful. Meanwhile, her right eye, that she’s been blind in since 2015 started to see shadows and then in the last few weeks has started to see details and the doctor can’t explain why her vision in that eye is returning but what a miracle she isn’t completely blind. It’s been very stressful because I worked remotely from there. I’m back home now getting ready to go to the office tomorrow. Alex’s husband does a great job taking care of her. I’m so thankful for him. Other than that, I’m doing okay. Just hanging in there and working a lot. I was reading your posts to see how you have been doing. It’s so good to hear from you. You are so strong. Sending love and a big hug to you. 🧡🧡
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One of the weird things about MS is that nothing is sometimes everything. Sight can be gone for a time and then come back, everything is temporary before it becomes something recovered. I once spent 3 days and nights paralyzed, sitting in my chair and unable to move at all then on the 4th day got up and all was well. I guess that’s what makes this such a hard to handle disease.
It’s great to hear that Alex got some of her vision back. There is always the chance that it will all come back like new but I try not to hope for the best because there is also the chance that it will be gone forever. That seems to be what makes this disease so difficult to diagnose and treat, but there are new inroads every day to the cause and hopefully some day there will be a cure. I probably won’t live long enough to see the cure but at 83 I’m doing remarkably well.
My life now is spent in assisted living after a few falls and broken bones. I’ve had a couple of falls here but managed to get up before any of the staff knew about it. And then there were the crazy ones. Like sliding out of my chair once and knocking my lunch tray off the table. Might have been able to get up from that one but they came in to collect the tray and found me trying to clean up the mess. That led to a week of having them take my vitals every hour which was a crazy way to have to live. Nothing like the fun of being half asleep and having a thermometer shoved in your mouth, or as in one time it was shoved into the bite of link sausage I had just put in my mouth. The sausage temp was 105 degrees and they wouldn’t take my word for it that my temp was normal but thanks to the kitchen for getting the food to me while still warm.
There have been a few bad times when 2 of my brothers died, the first one in 2020 and the second one last year. Following the second one, both of my sisters’ husbands died in April for one of them and 4 hours after that one was buried the other one died. The worst time though was in August when my 29 year old grandson was found unresponsive on the floor of his apartment. After extensive testing it was found that he was brain dead and my daughter and son in law decided to stop life support. His twin sister was there as were his two brothers, and we are still trying to deal with that. He was diabetic and they just couldn’t seem to regulate his insulin level.
There are some things I don’t mind about getting old but not being able to tell my siblings goodbye was not one of them. They all lived away and I am not able to travel any more. So now I’ve taken up most of your space here, but it is strange that we were thinking of each other at the same time. Let’s keep in touch, okay? HUGS!
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With a mother like you, she has hope.
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I hope so! She’s been a handful lately! I won’t lie!
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Awww. Thank you for being there.
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Thank you for this comment! I made this for my girl!
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You are very graciously welcome. Your girl will love you for it.
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🙂 🙂
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You are not alone either sweet friend. I’m only a call away, and you and Alex are in my prayers. If talking will help, call any time day or night, I have a dry shoulder and good ears and a speaker phone with loads of liquid to keep my throat open when you want to listen, or ear drops if you want to talk and my ears get dry. Angie
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AWE thank you! That is so sweet of you! I made this for Alex today! Hopefully she liked it! She’s a little upset today! Big hugs to you and thank you so much Angel friend! ❤ xoxo
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WOW ! Wonderful ! ❤ ❤ ❤
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Thank you Paul feels like fire to me this waiting and laying still. ❤️
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Superbly Hopeful…..May you soon be fully recovered. Hugs! ❤
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I will be. I made this for my girl since I can’t be there. I miss her a lot. 💕💟
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All shall be well…..Hugs! ❤ ❤
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Just the waiting seems forever. 😄😳😛😂😤😘❤️
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Michelle, I know you are a good friend, one who would be there for your friends! 🙂 ❤
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Thank you so much. You’re right I am. Also as I’ve gotten older decreeing my real friends has been so much easier. I’m very thankful for them. Thank you for your sweet comments! ❤️
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“You are not alone “; Those are the worfd That the pope Francis told the refugies in Lesbos Island .
Love ❤
Michel
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Oh yes I love the pope. Beautiful thought you share Michel thank you love to you 💕💟
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but hey… hell can be good
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That’s true and it’s not all that scary either. 😳
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